Undiagnosed Autism in Older Adults

For many individuals, the signs of undiagnosed autism may not become clear until later in life. As awareness grows and understanding deepens, more older adults are exploring the possibility that they may be on the autism spectrum. In this post, we’ll review what you need to know about undiagnosed autism spectrum disorders in adults.

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Can An Adult be Diagnosed with Autism?

Most people are diagnosed with autism in childhood. However, as autism becomes better understood, more adults are getting a diagnosis later in life.

Can Autism Go Undiagnosed?

There are many reasons for undiagnosed autism in older adults. Some may not be aware that their behaviors are related to autism. Others have learned coping strategies that allow them to navigate their differences in their daily lives. Meanwhile, others may find the cost of a diagnosis to be inaccessible.

Many adults with undiagnosed autism live happy and full lives, but others may find certain aspects of life difficult. This can include building meaningful relationships or having satisfying careers, despite wanting these things. Individuals with undiagnosed adult autism may also feel alienated and different without understanding why.

Next up, let’s look at how to get diagnosed with autism as an adult.

How Are Adults Tested for Autism?

Adults with undiagnosed autism who want to pursue a formal diagnosis can start by talking with their primary care provider, a psychiatrist, psychologist or social worker to figure out the best path for an evaluation. In most cases, a psychiatrist (MD), psychologist (PhD), or neuropsychologist (PhD) makes the medical diagnosis of autism spectrum disorder — though a full neuropsychological evaluation isn’t always required. A formal medical diagnosis is necessary, however, if you plan to apply for disability benefits related to autism.

Next, let’s take a look at facts and figures related to undiagnosed autism in adults.

How Many Adults Have Undiagnosed Autism?

As of 2022, the NIH estimates that 1 in 45 adults in the United States are autistic. This figure includes data from all 50 states and accounts for adults who may not have a formal diagnosis. There is no evidence that autism prevalence among adults varies by geography in the U.S.

What Are Signs of Undiagnosed Autism in Adults?

Some signs of undiagnosed adult autism include:

• Sensory issues. Certain sounds, lights, textures, or smells may feel overwhelming or soothing. Some adults cope by stimming, using noise-canceling headphones, or controlling their environment.
• Repetitive or restrictive behavior. Common signs include repetitive movements like hand flapping or rocking (“stimming”) and a strong preference for routines or predictability.
• Narrow interests. Many adults with autism focus intensely on a few subjects and develop deep knowledge of them, which can make socializing around other topics harder.
• Social challenges. Adults with autism may struggle with social cues, take things literally, or find small talk difficult. Undiagnosed adults might describe themselves as “awkward” or feel different in social settings.

Now that we know more about the signs of undiagnosed autism, let’s take a look at the benefits of receiving a diagnosis.

What Are the Benefits of An Autism Evaluation for Adults?

An autism diagnosis can have practical benefits, such as access to support services or accommodations at school, in the workplace, or in healthcare settings. It can also help some people better understand themselves and their behaviors. Getting a diagnosis can a;sp provide a sense of relief, offering answers to life-long questions about identity. Autism is a spectrum, and no two people experience it the same way. As awareness grows and diagnostic tools improve, more adults are receiving autism diagnoses.